Sarah Webb, SYLPN Founder
Hello. My name is Sarah and I was diagnosed with Parkinson’s at the age of 39 years old. It was the biggest shock of my life and I still have days when I can’t believe it has happened to me. My husband and myself realised we needed to start a network, as we found there wasn’t much support for us when I was first diagnosed. It been going since December 2011 and it’s been amazing to see it grow. My goals are to help find that CURE, offer help & support to fellow Parkies, plus try and raise as much money and awareness of Young Onset Parkinson’s.
Susan Venner, Social Events
I was 52 when diagnosed with Parkinson’s. As a very active and busy person it has taken quite some time to come to terms with Parkinson’s and an uncertain future. But sitting around worrying is not an option for me. Through SLYPN I hope to help develop mutual support and the enormous benefit of being able to share the ups and downs with people in a similar situation. I would also like to be involved in promoting a greater understanding of Parkinson’s and positive ways of coping with it.
Kerry Wilson, Marketing
When my mum was diagnosed with Parkinson’s at 53 we were shocked; wrongly we believed Parkinson’s only affected the elderly. That was 20 years ago & she continues to have struggles although it is well managed with a number of drugs, a positive outlook, yoga sessions, walking, travelling & spending time with family & friends. My background is in Marketing & when I came across an opportunity to join SLYPN I felt it was a perfect fit. I’ve been delighted to work on a number of fundraising projects for research and to find a cure.
Sue Roberts, New Members
My name is Sue and I was diagnosed in March 2013. I heard about SLYPN through my consultant and it has helped me over time because I feel that I’m not alone…. I was introduced to Pauline when I first joined and the two of us are now good friends. I am also in touch with Sarah and Susan – Susan and I have very similar symptoms. I know that by being part of this close network, there is always support. There are also many social gatherings and fund raising events. Please feel free to contact me, I look forward to speaking or meeting you very soon.
Angela Burton, Treasurer
Hi I’m Angela. I am an accountant and I volunteered to prepare the accounts and do the banking for SLYPN, although Sarah doesn’t let me get away that lightly! My son is friends with her son at school, and I met her shortly before she was diagnosed. I have also seen the effects of Parkinson’s on my husband’s side of the family and wanted to help out in whatever way I could. There’s always something going on, and it’s such a positive and enthusiastic group to be involved with.
Matthew Carlton, Digital Marketing
Hi I’m Matthew. I began working with SLYPN after finding out that one of my friends (an SLYPN member) had Parkinson’s. So when I asked her if I could help in any way I didn’t expect her response to be ‘well, can you help design a new website for SLYPN!’ I did that and I enjoyed working with Sarah so I offered to help manage the site on an ongoing basis, as well as providing general marketing advice as that is my professional area.
Liz Whitson, Social Media
I have known Sarah since our boys started at our local pre-school nursery. We have always spoken about social media and the importance of it for SLYPN and now I am part of the team! I’ve lived in the Wimbledon area since my son was born so it’s great to become more involved in the community. I work with technology every day as I work part time for a digital magazine, so social media is core to what I do for my job. I hope to meet lots of followers in person over the next few months at the various events that I will be tweeting about!
Simeone Sistarelli, Popping Instructor
Our mailing address is:
South London Younger Parkinson’s Network
PO Box 215, 265-269 Kingston Road